Welcome
Within hours, a baby boy unexpectedly goes from his crib to the pediatric intensive care unit as he begins the fight for his life. What initially appears to be liver failure is later diagnosed as Hemophagocytic Lymphohistiocytosis and the only cure is a successful bone marrow transplant. But what happens when that doesn’t work, and the doctor gives up on him? As if that wasn’t enough, the family then receives news that their other child somehow carries the same, extremely rare genetic mutation and could die at any moment. This story is a family’s unbelievable journey through the depths of hell and living through every parent’s worst nightmare, twice. Read more
About Kristin Akin
Kristin Akin lives in St. Louis with her family. She stays busy working on their nonprofit foundation, The Matthew and Andrew Akin Foundation and volunteering with the Ronald McDonald House Charities of St. Louis. Looking back now, being a communications major at the University of Tulsa and writing so many papers has proven its value as she completes her first book.
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Excerpt from the Book
We knew it was going to be a long day, driving six hours each way. But making the round trip to Cincinnati Children’s Hospital was the easy part. Read more